If you register for free, you will be able to post threads, vote on polls and lots more. If you have problems with the registration or logging in, please contact the administrator.
Anyone had or know anyone that's had Non Hodgkin's Lymphoma?
Was diagnosed with this pish today and I'm truly bricking it.
From what I can remember (was too shocked to take it all in) it's stage 1A (which means it's localised- thank f**k), and it's a slow burner type - which means it's more difficult to treat. Supposedly aggressive = good and slow = bad. Good news is I suppose the oncologist said I won't need treatment (other than a single drug) until the wee bugger in me turns nasty. As things stand the benefits from leaving things as they are far out weights any treatment on offer as it could be years before it turns nasty. Aye, but it could be weeks too.
Not looking for any sympathy whatsoever as I have my family and friends for all that malarkey, just wanted to see if anyone else has been in the same boat. Would go to a lymphoma forum as it would make more sense tbh, but if truth be told I'm too chicken **** to do so for fear of seeing numerous horror stories. Might eventually, but I'm not ready to face all the doom and gloom yet.
The strange thing is, I feel the best I have done in years health wise and I only noticed it by chance - a wee swollen gland in my neck about the size of a pea.
09-27-2007, 10:44 PM
Anyone had or know anyone that's had Non Hodgkin's Lymphoma? Post #2
The fast burner type is more likely to be completely cured for ever, but if it's not it's much worse. With the slow burner, you're more likely to get years of remission after a successful initial treatment, but recurrence is more likely as well (although by no means a given). Having said that, it's also possible to get a number of successful remissions, and complete cure is also possible. Also, with some types of slow acting NHL, some patients actually never require treatment in the first place.
One other point. With the long life expectancy with this type of cancer, you also have a much better chance of new more effective treatments being developed. That's the case with any cancer, obviously, but in the case of NHL there are some promising new treatments in the offing, using monoclonal antibodies to target the area more effectively, either given in conjunction with chemo, or sometimes attached to radioactive tracers.
were you told your specific type of NHL? There are a number of different variations of it.
09-27-2007, 11:28 PM
Anyone had or know anyone that's had Non Hodgkin's Lymphoma? Post #8
Originally posted by Fat Bhoy Tim:
The good news, as I mentioned befoe you went for the check, is that both kinds are fairly treatable and the odds of recovery are excellent.
aye, he mentioned that if you had to get this **** it would come in the top 5 of the ones you'd want. Call me old fashioned, but I don't 'want' any cancer no matter how treatable it may be.
09-28-2007, 01:29 AM
Anyone had or know anyone that's had Non Hodgkin's Lymphoma? Post #9
Originally posted by mark g:
The fast burner type is more likely to be completely cured for ever, but if it's not it's much worse. With the slow burner, you're more likely to get years of remission after a successful initial treatment, but recurrence is more likely as well (although by no means a given). Having said that, it's also possible to get a number of successful remissions, and complete cure is also possible. Also, with some types of slow acting NHL, some patients actually never require treatment in the first place.
One other point. With the long life expectancy with this type of cancer, you also have a much better chance of new more effective treatments being developed. That's the case with any cancer, obviously, but in the case of NHL there are some promising new treatments in the offing, using monoclonal antibodies to target the area more effectively, either given in conjunction with chemo, or sometimes attached to radioactive tracers.
were you told your specific type of NHL? There are a number of different variations of it.
I was told, but can't remember. I'm seeing my Oncologist in a few weeks and this time I'll have questions written down and I'll probably take more in. I dunno if it's normal or not but I just basically shut down once he said 'cancer'. Everything after that was a blur.
Thr Onco also touched upon the monoclonal antibodies, however, I wasn't paying to much attention.
09-28-2007, 01:33 AM
Anyone had or know anyone that's had Non Hodgkin's Lymphoma? Post #10
Anyone had or know anyone that's had Non Hodgkin's Lymphoma? 
Linear Mode
