Anyone had or know anyone that's had Non Hodgkin's Lymphoma?

retired_selvinel · 09-28-2007, 05:39 PM

Quote:

Originally posted by MacG:
<BLOCKQUOTE>Originally posted by Fat Bhoy Tim:
<BLOCKQUOTE>Originally posted by mark g:
<BLOCKQUOTE>Originally posted by Eleanor_Rigby:

One question, do you have to drink that nasty contrast every time you have a scan?

Depends what they're looking for and where, but usually for a CT scan you would. </BLOCKQUOTE>

Did that myself on Thursday, they had to give me an enema as they tried on sunday and it gave me a violent reaction. On the pot for most of the day. </BLOCKQUOTE>

I didn't have any problems with the metal tasting stuff they gave me, although I felt like I was sucking on a spoon.

I've only been for one CT scan but I presume you would need to take it every time as it shows up on the scan. </BLOCKQUOTE>

Yup, colon has to be full of liquid to hold the solution. In my stomach it buggered me up, hence the other way.

retired_kris10nicole · 09-28-2007, 05:46 PM

When do you get your results?

retired_selvinel · 09-28-2007, 05:57 PM

Tomorrow. I know my abdomen is fine, just need to make sure the nodes around the bawbag are too, but they would've said at the time if there was something I should be aware of.

retired_ranjanabhat · 09-28-2007, 11:05 PM

Fingers crossed for you FBT, mate. Let us know how you get on.

retired_kris10nicole · 09-28-2007, 11:08 PM

Quote:

Originally posted by Fat Bhoy Tim:
Tomorrow. I know my abdomen is fine, just need to make sure the nodes around the bawbag are too, but they would've said at the time if there was something I should be aware of.

Hopefully should just be a formality. Good luck mate :thup:

powerhouse283 · 09-29-2007, 12:14 AM

yeah good luck fbt

retired_ranjanabhat · 09-30-2007, 10:58 PM

Mark, after reading some sites I'm sure I remember the term Follicular lymphoma being used (could be wrong though)

5 year survival rate between 60 - 73 % :o Feck me I don't like those odds, and it's not curable - an even bigger :eek:

I knew I shouldn't have read those sites :thdn:

retired_kris10nicole · 10-01-2007, 10:25 AM

Quote:

Originally posted by Eleanor_Rigby:
Mark, after reading some sites I'm sure I remember the term Follicular lymphoma being used (could be wrong though)

5 year survival rate between 60 - 73 % :o Feck me I don't like those odds, and it's not curable - an even bigger :eek:

I knew I shouldn't have read those sites :thdn:

It is curable?

As an example

Quote:

Radiotherapy
Radiotherapy is the use of high-energy rays to destroy cancer cells, while doing as little harm as possible to the healthy cells. It may be used when the lymphoma cells are contained in one or two groups of lymph nodes in the same part of the body (Stage 1 or 2). Treatment of early-stage follicular lymphoma may lead to a cure in some people. Radiotherapy may also be given with chemotherapy.

retired_kris10nicole · 10-01-2007, 10:40 AM

Quote:

Low grade lymphomas

The most common type of low grade lymphoma is follicular B cell lymphoma. About 1 in 5 of all lymphomas diagnosed are this type. Low grade lymphomas can be difficult to get rid of altogether. But they are often kept under control for several years at least.

If you have follicular lymphoma diagnosed at an early stage, when it is localised, it can usually be cured with radiotherapy. Of every 100 people diagnosed with stage 1 or 2 follicular lymphoma, between 60 and 80 (60 - 80%) are alive and well 10 years later, with no sign of their lymphoma.

The Follicular Lymphoma International Prognostic Index (FLIPI) has identified five factors that are useful for predicting survival (prognosis). Doctors can use these factors to predict which patients may benefit from specific chemotherapy treatments.
•Being older than 60 years
•Having stage 3 or 4 follicular lymphoma
•Low haemoglobin level
•More than 4 involved lymph node areas
•Serum lactate dehydrogenase level greater than the upper limit of normal
In people with none or one of these factors, on average, 91 percent are alive at 5 years after diagnosis, and 71 percent are alive 10 years after diagnosis.

In people with 2 of these factors, on average, 78 percent are alive at 5 years after diagnosis, and 51 percent are alive 10 years after diagnosis.

In people with 3 or more of these factors, on average, 52 percent are alive at 5 years after diagnosis, and 36 percent are alive 10 years after diagnosis.

If you look at those survival prognosis factors, there's 3 you definitely don't have, the age, the stage, and the number of areas involved. So the absolute worst you could be is in the second risk group, which immediately has better survival rates than you were quoting. Given that you're 1A, and don't need treatment yet, i'd guess that the chances of having both of the other 2 is probably quite small. So straight away, you're hopefully looking at the lowest risk group there, where the 5 year survival rates are 91%. And you're also in the group (early stage and localised), where radiotherapy may cure you completely.

retired_ranjanabhat · 10-01-2007, 10:42 AM

Quote:

There is no consensus regarding the best treatment algorithm, but watch-and-wait policies, alkylators, anthracycline-containing regimens (eg. CHOP), rituximab, autologous and allogeneic hematopoietic stem cell transplantation have all been applied. The disease is regarded as incurable (although allogeneic stem cell transplanation may be curative, the mortality from the procedure is too high to be a first line option). The exception is localised disease, which can be cured by local irradiation. The typical pattern is one of good responses from treatment, followed by relapses some years later. Median survival is around 10 years, but the range is wide, from less than one year, to more than 20 years. Some patients may never need treatment.

The part in bold is the bit that freaked me out. I'm a big girls blouse when it comes to things like this, mate. Pay no attention to my rants.

Anyone had or know anyone that's had Non Hodgkin's Lymphoma?

Grab a beer, sit back and relax.

Anyone had or know anyone that's had Non Hodgkin's Lymphoma?